Muscular Dystrophy Society at DGSOM

Muscular dystrophies (MD) are a genetically and clinically diverse group of rare muscle disorders that lead to the progressive weakening and breakdown of skeletal muscles. With nine types of MD, all characterized by eventual loss of strength and mobility, individuals affected by these conditions face increasing disability and potential deformities. Although there is no cure, ongoing research and treatments provide hope for managing symptoms and improving quality of life. The aim is to empower students to go beyond the classroom and engage in political advocacy and leadership. In partnership with the Muscular Dystrophy Association (MDA), we focus not only on muscular dystrophies but also on a wide range of neuromuscular disorders. By working together, we aim to shape healthcare policy and advocate for better patient care and research funding for these rare and often underrepresented diseases. Our mission centers on raising awareness of neuromuscular disorders within the medical and broader communities, while providing students with hands-on opportunities to explore careers in medicine. Through collaboration with national medical organizations and attendance at conferences, students can build professional networks and participate in meaningful discussions around the future of healthcare. These experiences will equip future healthcare leaders with the skills necessary to drive change in both patient care and medical research. Working closely with the MDA to engage in political advocacy at the local, state, and national levels. We advocate for policies that promote funding for neuromuscular disease research, support patient access to cutting-edge treatments, and raise the profile of these rare diseases within the healthcare system. By involving medical students in these efforts, we aim to foster a new generation of physicians who are not only skilled clinicians but also leaders in healthcare policy and patient advocacy. In addition to advocacy, our organization supports opportunities to learn more about MDS and other neuromuscular issues from talented faculty at UCLA involved in research. By partnering with UCLA Health physicians students will gain valuable insights into the challenges and advancements in the treatment of neuromuscular diseases. These efforts will allow students to see firsthand the importance of research in shaping the future of healthcare and improving patient outcomes. By creating a network of student advocates for neuromuscular health, we hope to build a movement dedicated to improving the lives of individuals with neuromuscular diseases. Through leadership, advocacy, and education, the Muscular Dystrophy Society and Neuromuscular Illness Club will work to make a lasting impact on the future of medicine.

musculardystrophysociety@gmail.com

Signatories: Angela Minasyan, Julieta Serobyan, and Nare Ghaltakhchyan

Advisor: Pamela R Cysner